Simon's doctor is really trying to find a solution to get the esophagus to stay open so he doesn't have to operate so often. So in 2 weeks when we do this again, he is going to try injecting a steroid called kenalog directly into the scar tissue in his esophagus. The hope is that this will slow the stricture so we can spread the procedures out bit. If that doesn't work he is considering going back in and cutting the whole piece of scar tissue out and repeating the repair. This is obviously not what we were hoping for. The surgeon said he has never had a stricture that he could not get to stay open with dilation, so he is pretty frustrated too. I know he has Simon's best interest at heart and will figure out a solution. All the things he has mentioned are things Boston Children's hospital does everyday... they have a program which is entirely dedicated to esophageal atresia. It is also where Dr. Foker (the Dr who came up with the procedure that grew his esophagus so it could be repaired) practices. Anyway, the point is, Dr. Soldes WILL figure it out, I have no doubt in my mind.
Look who started on cereal!!!!!! I am thinking he likes it! : ) Since he is gifted (LOL) he feeds himself already!
Here is just a happy, lazy day!
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