Well, tomorrow is the big day! Surgery Day! We all can't agree more that Simon looks stronger than ever and has grown to over 7 pounds. Molly and Clint are so busy with things so I may stand corrected on some of the info which I will share. Tomorrow the surgeons will perform the surgery about 10:45am. The 1st step is to remove the surgically placed feeding tube in his abdomen. This will allow the stomach to "float" more freely and hopefully move even closer to the connection with the esophagus. What is not connected will be surgically repaired. This, as you can imagine, is a very delicate surgery will take several hours.
Simon will return to his newly private room where he will not be able to eat for 7-10 days as the connection will need to be checked for leakage, etc. From there, stay tuned as I am not sure what happens. It appears a month stay in the hospital is next after the surgery. This could be shortly after 4th of July that Simon will be home.
Last night Molly and Clint held a baptism for baby Simon. A priest from St. Francis DeSales met everyone at the hospital. Simon was wheeled out of the NICU into a beautiful room at the family center. He only needed his g-tube and a portable monitor. He did great! He had lots of friends there! His God Parents Aunt Shannon, Aunt Beth & Uncle Mark. His grandparents were there and his Aunty Nancy and Aunt Mary Ellen too! It was a beautiful night. I will upload pics later. Here is just one...
I love that the family has now moved to "arguing" over who will hold Simon and play with him etc. I think this means we can finally see the light at the end of this. Not to down play the importance of tomorrow or the struggles and challenges ahead, but I think peace was the theme last night and we all know Simon is going to be okay and his strength, all of our prayers will win out in the end.
We will post surgery updates tomorrow.
Please, please pray for Simon! Please pray for the surgical team. May they have their best day on the job EVER! May they be guided to fix our little guy and make him all better! Pray for Molly and Clint and the grandparents as they wait tomorrow, as we will all wait tomorrow, for the long surgery to come to an end.
THANK YOU!!
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