Simon will continue with his surgeries to dilate his esophagus this week. On Wednesday he will have this done again and likely every month. The purpose of this is to continue to open up the esophagus. Molly mentioned the other day she knows it needs done again as he can't really spit up right now, so she knows the space is getting tighter in there at this time.
Simon has had a little bit of issues with this feeding tube. He had to have it worked on in the ER the other night as it was bleeding and is infected. He has to have this in for a while. The good news is that he almost always eats by bottle and does great. I fed him a bottle on Friday!!! He did great and is just a PERFECT baby! So beautiful and just such an awesome little guy! He is 9# 13oz now as well!!
The big day is Friday! Simon's Fundraiser at St. Paul Church on Brown Street in Akron. We will be in Boeke Hall...this is on the far side of the school and church. Look for the balloons! :) Thanks to everyone who has sent messages that they are coming, who have already donated, and whom are helping with donations, etc. We really appreciate it! See you Friday, Aug 10 from 4-8pm at St. Paul. I hear there will be a very special guest of honor in attendance!!!! Keep your fingers crossed he bounces back from Wednesday's surgery!
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